Newly Diagnosed Paediatric Type 1 Diabetes Pathway

Key Points

  • Cross site guidance

  • Multidisciplinary management of paediatric patients newly diagnosed with type 1 diabetes

Version:1.0
Date Issued:25/11/2025
Review Date:01/12/2028
Key words:Paediatric diabetes, newly diagnosed pathway

This is a controlled document. If you are using a printed copy, check it against the version on the intranet to ensure you are using the latest edition.

Abbreviations

BGBlood glucose
GPGeneral Practitioner
HbA1cGlycosylated haemoglobin
OPAOutpatient appointment
PDSNPaediatric Diabetes Specialist Nurse

Tasks to be completed on the ward, prior to discharge

  • Newly diagnosed bloods to be taken by medical team

  • Ward nursing staff to collect a newly diagnosed bag from the diabetes office

  • Ward nursing staff to set up the ‘My Life’ app and start using Accu-Chek Instant blood glucose meter

  • Type 1 diabetes pack to be given both electronically and as a hard copy

  • PDSN to begin education with child/adolescent and both parents

  • Dietitian to start education as per their individual protocol

  • Administrator to link the ‘My Life’ app with Glooko via the cloud

  • Blood glucose diary to be given and explain how to input data and highlight highs and lows

  • School visit to be arranged

  • OPA within first 2 weeks to be arranged

  • Home visit by PDSN to be arranged within the first 2 weeks

  • GP letter to be sent informing of diagnosis, advising of medication/supplies required to be added to repeat prescription

  • Diabetologist to review child/adolescent

  • Daily discussion with the child’s/adolescents designated ward staff nurse

  • Administrator to send to team informing of child/adolescent diagnosis

  • Obtain contact details for entire family

  • Research information leaflet to be given

Week 1

  • PDSN home visit to review BG diary, continue education, ensure they have all necessary contact details and check all the medication and supplies from GP

  • Provide School education, diabetes pack and diabetes school care plan

  • Dietitian to carry out home visit to continue education

  • Daily Inpatient review by diabetes team and then email/phone contact daily

Week 2

  • Telephone or e-mail contact from PDSN

  • OPA with Consultant:

    • Child/adolescent to bring type 1 diabetes pack to clinic

    • PDSN to take them through the clinic process

    • HbA1c to be taken

    • Newly diagnosed 1st clinic appointment proforma to be completed

    • Meet research nurse

    • Dietetic review

    • Consultant to review blood results and take action as necessary

    • Download to be reviewed by family and consultant, acknowledging average BG and recapping ‘Top Ten Tips’

    • Meet Psychologist

    • Family tree to be completed

Continued support

  • Child/adolescent/parent/school to review data weekly for first month and 2 weekly there after informing the diabetes team of any problems

  • Telephone/E-mail contact with PDSN weekly for first month and then 2 weekly thereafter to:

    • discuss data and offer support and advice (family to advise where they feel changes need to be made before PDSN offers their advice)
  • If average BG 8.5mmol/L or above on download:

  • inform entire team,

  • PDSN and Dietitian to review education in all areas,

  • Psychologist to be informed,

  • revert back to weekly contacts

  • consider school support

  • 6 weekly clinic appointment

  • Clinic appointment 2 months after 1st appointment and then 3 monthly thereafter